A community workshop titled “Kaikorthu – together in KARE this new year”, aimed at strengthening the families of children affected by Spinal Muscular Atrophy (SMA), was organized here on Friday at the CCK Auditorium in the presence of Health Minister Veena George. It included medical professionals, patient advocacy groups and families affected by the disease.
Ms. George said the program, which initially involved 21 children, now has 110 beneficiaries. She added that the goal was to extend the age limit for providing the drug up to 18 years.
SMA is a rare neuromuscular disorder characterized by degeneration of motor neurons that leads to progressive muscle weakness and wasting. The disorder does not affect any brain function, and affected children have age-appropriate cognitive abilities, said Mary Eype, chief of the Department of Pediatric Neurology.
However, this condition often leads to psychological problems, as affected children cannot move independently. Dr. Eype added that the disorder is comparable to motor neuron disease seen in adults. She warned that if the disorder is not treated, the condition can lead to serious health complications and can even be fatal.
Following the program, the minister communicated with children affected by SMA and their parents. Children affected by SMA showcased their singing skills and a calendar featuring their artwork was released.
Published – 02 Jan 2026 22:10 IST
